18 Feb 2008 04:53:04 | Janet Auty-Carlisle
Second Opinion to Second Chances Janet Auty-Carlisle grew up
playing with toys and dolls, just like any other girl. She went
to school, got married and started a family. Everything seemed
to be going well when the unthinkable happened. Janet was
diagnosed with Parkinson’s disease and, with the support of a
devoted husband, began to deal with doctors and medications and
hardship. Although Janet was still able to work at first, things
became harder for her as time went on. And as the medications
began to take their toll, she was forced to resign her position.
Before the diagnosis Janet ran a company that specialized in
corporate relocations, aiding people in their own transitions by
helping them get settled into new schools and tapping into local
services as they adapted to their new homes. Janet eventually
decided to use the skills she’d acquired in her relocation firm
to help people transition when learning to live with a chronic
disease. She formed a local support group which met once a
month, organized the first annual SuperWalk for Parkinsons' and
raised $45000 the first year. She began an education campaign at
the local school board and traveled throughout her community
raising public awareness. In addition Janet developed a program
called “Bridging the Borders”, a weekend-long awareness
conference for people with Parkinson's and their care partners,
and an empowering program for fund raising called ICAN.
(www.icanforpd.ca). After six years of taking medication and
being exposed to so many people with Parkinson's, Janet noticed
that the disease was not progressing. Questioning her specialist
Janet was always told "You are in denial. You do have
Parkinson's. Deal with it." Not satisfied with this answer Janet
met a neurologist at one of her conferences who agreed to
provide her with a second opinion. Shockingly, this doctor told
her that her symptoms were possibly due to stress and a virus
she’d had at the time of the original diagnosis and not
Parkinson’s disease at all! It took Janet a full year to wean
herself off the powerful drugs she had been taking for the wrong
disease. The medications had some serious side effects, but she
overcame all of this. At 48 years of age, she felt like she’d
been given a new life. Janet now lives by the motto: “The only
constant in life is change.” Janet discovered that her real
strength and passion was for coaching, writing and speaking.
After coming to terms with her illness, she realized that what
she wanted most out of life was to help people learn to live a
life of joy and passion. Janet now coaches others as a Lifestyle
health and wellness coach. Having experienced similar life
situations as her clients provides Janet with the ability to
relate to her clients on a more intimate level and place of
profound understanding. What lessons has Janet learned from her
experiences?
1. You are responsible for your own health care. It's your body
nobody else's. If you aren't sure about something or want a
second opinion then get it. Your medical team should support
such a decision. If they don't support you go find a new doctor
or medical practitioner.
2. ask lots of questions. Be educated about your illness.
Receiving a diagnosis of a future filled with chronic care,
chronic illness and no chance for recovery is life altering no
doubt, but it is not life ending.
3. Take the time to do what you love, take the time to surround
yourself with people you love and create a supportive network.
If your medical team is not part of this network go find another
one. Never be afraid to query your doctor and challenge them on
therapies if you feel uncertain.
4. Always, always, always ask for information if you are not
sure what you are being told. Finally, if your doctor is rushed,
and who isn't, insist they spend more time with you if you have
questions. I often left my doctor's office feeling as if I had
been brushed off for more important cases and felt very
frustrated. Don't forget, like you, your doctor is also a human
being with feelings and issues and if you have a chronic illness
you will be in a relationship together for a long time. Work
together to create a comfortable visit each and every time you
go to the office.
Resource Box: Janet Auty-Carlisle’s mission is to coach people
into being the best they can be and to help them live the best
life possible. She speaks passionately on overcoming the hurdles
everyone faces in life, and learning to transition through the
many changes that we all experience. She believes that everyone
can achieve greatness: They just have to believe in themselves.
Her website is www.tobeyourbest.net.
About Author :
Janet was misdiagnosed with Parkinson's disease, after being on
the medication for over five years. She has used her
misdiagnosis to help others who are in the same situation as
her.