23 Feb 2008 03:21:29 | William Hammond, J.D.
What is guilt? According to Dictionary.com, it is being
responsible for the commission of an offense. Remorseful
awareness of having done something wrong. Self-reproach for
inadequacy or wrongdoing.
Is it fact, that you, the caregiver, are responsible for an
offense? Have you done something wrong? Quite the contrary. You
have taken on the responsibility of caring for a person you love
very much. You did not ask for this person to have Alzheimer's
Disease, nor did you ask to be the caregiver. This is a
situation that life has presented to you and you have stepped up
to the plate. It was a choice to care. What a brave, honorable
decision you made. Whether you care for them by yourself or you
have assistance (in home care, day care or nursing home care),
you are the "one" there for them.
Why do you take responsibility for things you're not "guilty"
of? Is your best not good enough? Of course it is. So, why do
you feel inadequate? Because you set goals that are unattainable
for anyone to reach.
I have worked with many caregivers over the past 20 years and
the majority of them faced feelings of guilt. They put their ALL
into caregiving and yet, never felt as if they were doing
enough. If you are doing your best, then you are doing enough.
You are not guilty of anything. You have not been "sentenced" to
this situation, it has been given. When something is given, it
is a gift. You can't control what is given to you, but you can
control how you choose to respond.
A real life example: Several years ago I worked with a man who
was the caregiver for his wife with Alzheimer's Disease. They
had been high school sweethearts and had been married close to
55 years when I met them. I remember the first day he talked
with me, he was distraught, beside himself, sort of "scattered."
(Little did I know, he and his wife had been presenters for the
Dale Carnegie series, obviously not a "scattered" man).
This was a man feeling the stress of caring for his wife. When
he made the decision to take care of himself and get a break, he
brought his wife to the day center where I worked. Soon after, I
began to see a transformation of his state of mind. He was at
ease, happy, alive! One day he confided in me about a change in
his attitude. He said when he would put his wife to bed at night
and finally sit down to relax, there she was. He said the moment
he saw her, his entire body would tense up, feeling as if he
were going to explode. After several of these incidents and
feeling much guilt, he said to himself, "something has to
change, she can't, so I must." He said he suddenly remembered
someone telling him "to give thanks for ALL things." That was
his turning point. From that point on when his wife would come
out of the room at night, he would greet her, sit her next to
him on the couch. and hold her hand, as if they were dating
again. This change in his. response not only calmed him, but had
a calming effect on her, allowing her to rest better when she
did go to bed. He gave thanks for the "extra" time he had with
her. I still to this day think of them often and have such
admiration for that man, husband...caregiver. I'm thankful for
his example.
Do we as caregivers think we must punish ourselves by living
under the shadow of guilt and misery? Do we feel our loved one
is suffering so we must also? I hope not. The best thing we can
do for our loved one's and ourselves is to recognize that
feelings of guilt are irrational. We must take care of ourselves
by dismissing those feelings. Feelings of guilt lead to
depression. Depression can lead to ill health and despair. If
you as the caregiver becomes "down" than who will care for your
loved one?
Caring for yourself requires taking breaks whenever they present
themselves. Never turn down an offer for help. Try to exercise,
even if it means taking a walk around the block. Journal your
feelings. Laugh with someone, even if it's yourself or the one
you're caring for. Talk with friends, family, clergy or join a
support group. Drink a coke. Watch your favorite movie. Dance.
Please, take care of yourself. The person you are caring for
needs you. They continue to love you, even if they can't express
it. Love goes beyond any disease, ailment or life's
disappointments.
So, I ask the question again, why do we feel guilt? Because,
it's a bad habit we must "kick." "Let go" of those guilt
feelings and start living. When feelings of guilt start creeping
up on you again (and believe me, they will), tell yourself "I'm
doing the best I can and my best is enough." "My verdict is; not
guilty, I have nothing to feel guilty for."
Say: Good-bye to GUILT (Give Undeserved Illusions Little
Thought) Hello to Life.
About Author :
William G. Hammond, JD is a nationally known elder law attorney
and founder of The Alzheimer’s Resource Center. He is a frequent
guest on radio and television and has developed innovative
solutions to guide families who have a loved one suffering from
Alzheimer’s. For more information you can visit his website at
www.BeatAlzheimers.com